"Volunteers do not necessarily have the time; they just have the heart."

(Elizabeth Andrew)


Past Fund Raising Events


Third Annual Queen Anne's Run

Won't you please support this worthy fundraising cause?  Please click the picture above go to the fundraising page. 

Click HERE to go to the Facebook Page.

Consider sponsoring an event

Our thanks goes out to all of you who are helping us find a cure for Kennedy's Disease

Updates on Previous Fund Raising Events

Queen Anne's Race

  • The 2014 race was another great event with over 150 runners competing in this 5K run.  The event raised over $11,000. 
  • The first Queen Anne's Race was held in the spring of 2013. It was a great success.  The event raised over $13,000Read More

QueenAnne-CoakleyFamily QueenAnne-EdRunning QueenAnneStartLine

Over $21,000 raised in two years!

 The KDA sincerely thanks the Queen Anne's Race Committee for their support


Golf Tournaments


Texas Golf Tournament

The Texas team has raised over $91,000 in four years!

  • The 2014 Kennedy's Disease Golf Tournament was held in September at the Cypress Lakes Golf Club, Cypress, TX.  The event raised $32,095. 
  • The 2013 Kennedy's Disease Golf Tournament was held in September at the Cypress Lakes Golf Club, Cypress, TX.  The event raised $23,000.
  • The 2012 Kennedy's Disease Golf Tournament was held in September at the Jersey Meadow Club, Houston, TX.  The event raised $18,000. The committee members responsible for putting on this exciting event are:  Murray Williams, Johnny Farrell, Ed & Nancy Noack, Charley & Louise Goforth, Jamie Zbranek, Lori & Chillie May, Verna & Mike Hoke, and   Krissy McLaren.  Read More
  • The first Kennedy's Disease Golf Tournament was held in October, 2011 at the Jersey Meadow Club, Houston, TX.The event raised $16,000.  The core committee consisted of Murray Williams, Ed and Nancy Noack, Louise and Charley Goforth, Verna and Mike Hoke and Krissy McLaren.  Read More




New York Golf Scramble

  • The first annual Kennedy's Disease CNY Golf Scramble was held in August at the Beaver Meadows Golf Club, Phoenix, NY. The event raised $8,000.  Read More

 The KDA sincerely thanks the golf tournament fund raising teams



Rolling for a Cure!

2014: This was Bob Tudor's 3rd handcycle marathon.  He rolled on December 7th and is still receiving donations weeks later - he currently has raiseed over $8,000 in donations and his goal was $5,000.  Congratulations and Thank You, Bob!


 Click image above for Bob's 2014 fundraising page

by Bob Tudor (2013)

I am attempting my first marathon to raise money for Kennedy's Disease Association. Palm Beaches Marathon 2013.  




I was diagnosed with Kennedy's Disease eight years ago. I found handcycling two years ago as a way to improve my health. Handcycling has also given me my independence back. It allows me to be involved with physical activity without assistance.  I remember my first time riding the handcycle. After one lap around the cul-de-sac, my arms fatigued to failure. After three months, I was able to ride a mile. After another 2 months, I was able to reach three miles. I am currently riding 15-20 miles consistently.  This is my first marathon.  While my arms and shoulders are weak, I will try my best to finish the race. For all you gamblers out there, I won't win. I will finish.


Bob did finish the marathon and, although he did not win the race, he did win BIG time with donations for the KDA!  

For his first KDA fundraiser ever, Bob Tudor raised over $7,000 in donations!!!

Thank You Bob!



 Others who are racing to help find a cure

Below are just some of the special people that have helped the KDA fund research grants and educational symposiums

Ed Meyertholen ran in
several marathons including the Boston Marathon, Motorola,
and San Antonio. Read More
Beth DuVall has run three half-marathons,
the latest in May 2011.
Read More
Sean Blasko has participated in several triathlons, the latest was
the Canadian Ironman.

Read More - Ironman-Canada

Read More - Ironman-Couer d'Alene

Ed_Meyertholen_Boston_Marathon Beth_Duvall_Running Sean_Blasko_racing

Devon Perry has ridden
her bike in several races ...
most recently to help the KDA.
Read More
Dave Heraper ran a race in 2010. He ran the race two reasons: (1) to improve my own health, and, (2) to promote awareness and funding for the KDA.
Read More

Tara & Erin Mills - Running Erin's 1st Mini-Triathlon. Tara and Erin Mills met their goal of $1,000 in funds raised through sponsorships and
a bake sale.

Read More

devon_perry Dave_Heraper tara-erin3


Tom Goynes and Sandy Goynes - "Paddling for Kennedy's Disease"

Tom Goynes and his daughter, Sandy Goynes, are experienced Texas Water Safari veterans and they paddled again in 2001 in this 260-mile long river adventure. However, this time, Tom and Sandy paddled for Kennedy's Disease. They secured pledges and donations for the Kennedy's Disease Association. Tom & Sandy Finished 16th out of 119 Boats with a finish time of 51 hrs 24 min.  Read More