Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The KDA web site is a source of real information and even stories of other guys with the same problem. All of a sudden I was not alone, and also the information about the research going on gave me hope."

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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What is Kennedy's Disease

 

Defective Gene

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

This neuromuscular disease is frequently misdiagnosed; often as Amyotrophic Lateral Sclerosis, (also known as ALS or Lou Gehrig’s Disease).

Click-hereFor more information on Kennedy's Disease

 

Click-hereFor Frequently Asked Questions

 

Click-here For Common Misdiagnosis

 

Working together to find a cure . . .  for our generation . . . and for our children and our grandchildren