Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

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"Back in the late 1990s, I felt alone. I had just been diagnosed with Kennedy's Disease. I came across the KDA and attended a Saturday chat. What an eye opener! There were two dozen others on the chat that were going through what I was experiencing."

The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease

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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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Defective Gene

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

This neuromuscular disease is frequently misdiagnosed; often as Amyotrophic Lateral Sclerosis, (also known as ALS or Lou Gehrig’s Disease).

For more information on Kennedy's Disease

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Working together to find a cure . . . for our generation . . . and for our children and our grandchildren