Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Back in the late 1990s, I felt alone. I had just been diagnosed with Kennedy's Disease. I came across the KDA and attended a Saturday chat. What an eye opener! There were two dozen others on the chat that were going through what I was experiencing."

YouTube Videos on Kennedy’s Disease

 


Featured Videos

Dr. Fischbeck summarizes Kennedy's Disease and possible treatments during an RDR conference in May, 2015

2015FischbeckRareDisease

Watch on YouTube

 

 

Rare Disease Day 2017

NORD RareDiseaseDay

Watch on YouTube

 

 


 

1. Research & Clinical Trials

2. KDA Conferences

3. Personal Stories

4. Other KD YouTube Videos

 


Research & Clinical Trials

Dr. Montie discusses her research on Kennedy's Disease
at PCOM, Jan, 2016

2016HeatherMontie

Watch on YouTube

Dr. Grunseich discusses Kennedy's Disease clinical trials
at the NIH, Bethesda, MD

2016ChristopherGrunseich

Watch on YouTube

 

 

 

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 KDA Conferences

Dr. Beitel talks about animal KD models during
2012 KDA Conference in New Orleans

2012LenoreBeitel

Watch on YouTube (Part 1)

Watch on YouTube (Part 2)

Dr. Meyertholen explains KD for a layperson during
2012 KDA Conference in New Orleans

Ed-Meyertholen

Watch on YouTube (Part 1)

Watch on YouTube (Part 2)

Watch on YouTube (Part 3)

 

Sex and all that Jazz: Dr. Romero describes sexual disfunction issues for KD men and women during 2012 KDA Conference in New Orleans

Dr. Maryellen Romero, Ph.D., CIP, a Clinical Neuropsychologist from the Department of Psychiatry and Behavioral Sciences at Tulane University's Health Sciences Center, gave the audience a great presentation on "Sex and All that Jazz" as it relates to Kennedy's Disease and then hosted separate breakout sessions for the men and women.

Watch on YouTube (Part 1)

Watch on YouTube (Part 2)

 

Dr. Pennuto explains IGF-1/AKT Signaling in SBMA Muscle
2012 KDA Conference in New Orleans
 

 2012MariaPennuto

Watch on YouTube

Re-Visiting KD Free Children - by Cliff Johnston
2012 KDA Conference in New Orleans
 
2012CliffJohnston
 
 
 
Dr. Poletti explains Small Heat Shock Proteins in SBMA 
2012 KDA Conference in New Orleans

2012AngeloPoletti

Watch on YouTube

 10 Years After - Dr. Meyertholen talks about the KDA and KD Research
2010 KDA Conference in San Diego, CA

2010EdMeyertholen

Kennedy's Disease-Free Children through IVF
2010 KDA Conference in San Diego, CA
 

2010CliffJohnston

Watch on YouTube 

 
 

 

 

 

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Personal Stories

Rare Disease Awareness and Kennedy’s Disease 

2009RareDiseaseAwareness

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 KD and the Waites

2011TerryWaite 

Watch on YouTube

 

  Treatment Diary of Mr. Mattheis

2016HansMattheis

 Watch on YouTube

 

 

  

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Other KD YouTube Videos

 

A NEW HANDLE ON KENNEDY'S DISEASE

IRB Barcelona 2010 Annual Report

IRB-Barcelona

Watch on YouTube

 

The UK's First Kennedy's Disease Clinic - 20116

 2016UK-KDAClinic

 Watch on YouTube

 

 Hand tremor, tongue and perioral fasciculation

in a patient with Kennedy disease

 TongueTremor

Watch on YouTube

 

Understanding Muscle Atrophy (Muscle Loss)

Fitness Exercises 

 2014DrLyoAndDrFernandez

Watch on YouTube

Biologist Neville Sanjana explains one concept in  5 levels of Difficulty - CRISPR
 
NevilleSanjana
 
 
 
 
 
 
 
 
 
 
 
  

 

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