Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I had just been diagnosed with Kennedy's Disease and had no idea what it was or what to expect. The KDA maintains an excellent website that explains the disease. I found details on symptoms, the cause, and exercises I could do to maintain my strength."

2016 Chat Room Transcripts

Topic:Open Forum  
       
ronmoffett  Good Morning  
carofer    good morning  
ronmoffett  carofer. I forget where you are from ?  
carofer    near santa cruz california where it is cloudy and cool today  
ronmoffett  Ok. I am about an hour from Chicago. Its also cloudy and cool. Around here its cloudy and cool most of the time.
ronmoffett  Kayss1. Where are you from ?  
ronmoffett  Carofer. The KDA conference is in San Diego this year. Are you able to attend ?
carofer    happy 4th of july weekend!  
ronmoffett  Good Morning Katrinata18  
ronmoffett  Happy 4th. Any plans this 4th  
ronmoffett  Good Morning Gary  
Gary_KC    Good morning. It is a rainy day this morning in Overland Park in KS. We need more rain, anyway.
ronmoffett  Gary. Cloudy and cool here in Illinois. How have you been feeling ?
Gary_KC    ron, I am fine because it is hot summer. It is about 65 degrees this morning.
ronmoffett  Good to hear. How are your winters. I assume somewhat mild ?  
Gary_KC    ron, it was a mild winter but it still bothered me.  
ronmoffett  Gary, cold seams to be the common problem with KDers. Here near Chicago, the winters are brutal. Like you. I do better in the hot summer.
Gary_KC    ron, I agree with you.  -)
ronmoffett  Gary, any plans this 4th of July weekend ?  
Gary_KC    BBQ at my friend home.  
carofer    any one going to the kda conference?  
ronmoffett  Very nice. I am busy with baseball with my son. Going to get together for some breakfast with friends also.
ronmoffett  I am not. Are u going carofer ? Its in San Diego  
Gary_KC    I wish I can attend the conference. I cannot attend it with my health condition.
ronmoffett  I am going to wish everyone a Happy 4th. I need to get my son to a baseball game so I need to drop off the chat early. Be well. 
Gary_KC    ron, Happy 4th of July, too.  
carofer    i am planning to go to san diego  
carofer    390 for my wife and me -- i assume tax deductible?  
carofer    c u ronmoffett, good luck with the baseball. keep an eye on the ball
carofer    i understand, gary_kc. maybe we can get some webinars going to broadcast the conference to others who cannot attend
Gary_KC    carofer, that is a good idea. I will try it this year.  
carofer    i use a rollie now, and my biggest hassle is picking things up off the floor when I drop them
carofer    the  rollie has been great for me. I have not fallen in more than a year now
carofer    previously, i would fall every couple of months  
Gary_KC    I use a manual wheelchair in home, powered wheelchair, and scooter to go outside.
carofer    how do you transport the scooter?  
carofer    that's been the showstopper for me with respect to a scooter  
Gary_KC    The both are the same seat height. I can transfer safely.  
carofer    do you have an attachment to the car to carry  the scooter?  
Gary_KC    No, I cannot drive car because I could not renew my driver's Lisence with my health condition. 
Gary_KC    I cannot walk at all.  -(
carofer    we have pretty good paratransit public transportation here that handles chairs and will give you a ride wherever. do you have that?
Gary_KC    Yes, we have a public shuttle bus transport for handicap and senior people.
Gary_KC    I can use it for doctor appointments and shoppings.  
carofer    not much happening here today. I hope that means that everyone is enjoying their holiday weekend, which is what I plan to do starting  now.  Have a great weekend and lots of barbecue!
carofer    see you all next month  
Gary_KC    Happy 4th of July, too. Enjoy hot summer. Take care!