Archives - 2015 and Older Transcripts
Kennedy's Disease Chat Transcript 12-01-2007
Topic: Open Forum
Host: Terry Waite
Murf: Morning Terry
TerryW: Trying to warm up here
Murf: TJ is here to do my landscaping
Murf: 65 here
TerryW: I have one of those Parabolic heat dishes next to me. works great
TerryW: tJ doing?
TerryW: hope hes supervising
Murf: he has two0 crews here to do it all today
TerryW: Is that what he does
MICH entered the room.
TerryW: Hi Mich
Murf: Him & Billy own a landscaping company
Murf: Hi Mich
TerryW: oh, ok
MICH: Good Morning Murf and Terry
TerryW: what's going on Mich
Murf: hows the weather in Utah?
MICH: We got a late winter in Utah...SNOW ON THE GROUND THIS MORNING
TerryW: Mich click on mky name and send me your e-mail. Some else in UT want to get in contact with you. I have an e-mail to forward to you
TerryW: double click on my name
Murf: right click then click private message
TerryW: ty, sending now
MICH: Terry... I;ve never met anyone in Utah with KD
TerryW: you can now
TerryW: 4 of them
Murf: a party!!
MICH: Terry... super... I did meet Bill when in Arizona and Jameson when he came here to see Yellowstone
TerryW: Now you will have 4 more to meet
MICH: Wow... four ... a family of four?
TerryW: did you get the e-mail
Murf: It's a wonderful life ... oops wrong movie
MICH: Haven't gone off and on to my email yet?
TerryW: the others should be arriving any minute
Murf: Happy today because my project is finally finished when TJ gets threw
TerryW: cool murf
TerryW: I have been shopping thru the KDA site on Amazon a lot
Murf: Final bill have to be cleaned up too that will not be so much fun
Murf: Me too Terry I just bought Jim Cramers new book
TerryW: Also buying PetMeds thru the KDA site
Murf: I just sent out 25 letters to my neighbors too
Murf: with addressed stamped envelops
DarwynP entered the room.
TerryW: Hey Darwyn, how have you been?
DarwynP: hi all
Murf: Hey Darwyn, made it home ok?
TerryW: glad you could make it, been thinking about you
DarwynP: Okay since Vegas
Murf: Great, it was good to see you
DarwynP: I had a little trouble on the flight home but good since
TerryW: I hope you had a good time at the conference
DarwynP: Enjoyeds being there
Murf: Who doesn't have trouble flying?
TerryW: I can fly only a short distance then my wings give out
Murf: Was it with the airline?
JACK entered the room.
TerryW: Hi Jack
Murf: Hi Jack
TerryW: I won't say that at an airport
DarwynP: No, my breathing again. Had to get oxygen.
JACK: HI TERRY
TerryW: Sorry Darwyn
JACK: HOPE NOT
Murf: They do not change the air anymore like they should
norminstormin entered the room.
Murf: Saves on fuel
TerryW: Darwyn, does the Oxygen help?
Gary_KS entered the room.
TerryW: hi everyone
Murf: Morning Norman - Gary
DarwynP: I'm not sure but just got really lite headed
norminstormin: good morning
DarwynP: Haven't needed O2 since
Gary_KS: Good morning, all. Gary Uchiyama joined from Kansas City.
Murf: Norman - how is the great white North? White yet?
Murf: How cold is Winterpeg?
JACK: TERRY THE CONFERANCE WENT WELL
DarwynP: Hi -20 celcius
norminstormin: lotsa snow
DarwynP: about 3 or 4 inches
TerryW: snow grrrrrrr......
Murf: I don't know how you guys do it anymore
DarwynP: I agree terry
TerryW: that makes my feet numb just thinking about it
norminstormin: had an accident last week i broke my foot again
JACK: THAT HURTS
Murf: no You ok
TerryW: ouch, nmurray knows that well
MICH: Darwyn...Utah has about 3-4 inches too and still falling
Murf: I broke mine enough
JACK: I FALL BUT HAVE NOT BROKEN ANYTHING YET
Murf: about 5 times
TerryW: Horse stpeeped on my foot again this week
norminstormin: twice now in the same spot
TerryW: good thing it was the baby
TerryW: 300 lbs only
TerryW: bruised bone only
DarwynP: Snow is suppose to come up from ND today
Murf: TJ said Hi Y'all
MICH: Terry... I have to be careful with my powerchair... its 325 pounds
TerryW: Gary, when are you going to come to a JKDA conference
mjo5712 entered the room.
TerryW: hi Mjo
Murf: Hi Mjo
mjo5712: hello everybody
DarwynP: Terry did you stomp him back
TerryW: So whats been going on Jack?
JACK: JUST WORK
JACK: WENT TO THE NIH IN SEPTEMBER
TerryW: when do you go back
Gary_KS: Terry, what is JKDA conference?
JACK: MARCH 5
TerryW: Darwyn the baby horse also tried to kick me with his front legg so I kicked him back
TerryW: He has not tried since
TerryW: it was not a herd kick
DarwynP: See it works! lol11
TerryW: Gary you know about our KDA conferences right?
JACK: HORSE ABUSE LOL
MICH: MJO... I bet your Tampa is alot warmer than the rest of our locations
Rich entered the room.
TerryW: Baby horse stallions will try to dominate you if they can
TerryW: you have to keep them in line
Murf: Hi Rich
Rich: good morning
MICH: Rich... thanks for sending Utah all the moisture
mjo5712: tampa is nice now no huricanes
TerryW: Gary ?
Murf: Houston too
Rich: Yes we have it in solid form
TerryW: Gary you got all the announcments about the conference right?
mjo5712: doing honey dews outside in nice temp.
Gary_KS: Terry, of cause, I know the KDA conference. If I want to attend the conference, I need to ask a friend to go with me. Because I can't traval by myself.
TerryW: I see
Murf: We will have extra KDA Conference CD's so any one that wants one that was not at the conference, please e-mail Terry
norminstormin has left the room.
Rich: Travel is tough for me too
TerryW: same here
Murf: me too
JACK: I WOULD LIKE ONE HOW MUCH
DarwynP: Did you'se chat after the conference? I couldn't get on. Wondering if it was my computer or you didn't have it?
billeric entered the room.
TerryW: Murf you are sending them out right?
Murf: but I put a note around my neck and ask the stewardess to love me!
Rich: Looking forward to any new info coming out of the conference
Murf: Yes I will send them out
TerryW: just have them send the request to you
TerryW: cut out the middleman
MICH: Good Morning Bill from snowy Utah
Murf: ya that would be best I guess
kellyC_ entered the room.
billeric: Morning Eric from rainy Phoenix
TerryW: Hi bill, Kelly
Murf: Hey Kelly - Bill
kellyC_: Hi to all
TerryW: rain is good
Murf: sun is better
MICH: Bill thanks for sending up the moisture
billeric: And how, Morning to all you good folks
DarwynP: Cold in P.a. Kelly?
Murf: I got flooded you got burnt this year
kellyC_: yes it is minas.. 18
JACK: WE COULD USE A LITTLE MORE RAIN UP HERE IF YOU HAVE TO MUCH
DarwynP: - 20 here
Murf: about +20 in Houston
kellyC_: its been awfully cold here in the praire's this past week
billeric: This was the first good rain here since last April!
TerryW: now onto the rest of the news LOL
kellyC_: our coldest day was minas 30 with the win chill more like 35
MICH: Bill we've been in drought too until now
Murf: I do remembere
DarwynP: I guess it's time to hibernate. lol
kellyC_: yupper's lol
Murf: Where did Norman go?
billeric: Mike G. sent out some really good pictures of the conferance.
Murf: they are on the CD
Rich: Any treatment possibilities comr out at the conference?
TerryW: Getting close,, 6-7 hopeful compounds are being tested
TerryW: show some promise
DarwynP: things sound promissing
Rich: At 81 I'm ready to be a tester
billeric: Lots of stem cell news this past week. I don't think anything is going to happen for us for awhile but research is really working on it.
TerryW: I added/updated 2 personal stories on the website
JACK: AS LONG AS YOU BELEAVE THERE IS HOPE MY DADDY ALWAYS SAID
DarwynP: good to hear Terry
Rich: As we used to say, it's time to shoot the engineers and start production
kellyC_: u did terry! awsome I"LL check them out..//4
MICH: Those personal stories are great... just stumbled upon them yesterday... they help relate in a hurry
kellyC_: they sure do MIch
TerryW: So did everyone put up their holiday lights
TerryW: Joking LOL
JACK: THIS WEEKEND
Rich: Yeah, I took the tree out of the box!
DarwynP: It was good to hear a little about everyone at the conference also. It hits home in a hurry!
JACK: PUT THE KIDS TO WORK LOL
kellyC_: we got our tree up now lol
TerryW: no kids here
MICH: That would be my wife and she's worn out enough just pushing me in a wheelchair shopping for gifts
TerryW: wife has to do it now
Rich: I only go to stores that have a scooter
DarwynP: tree is up no deco's yet
billeric: we don't do much other than a ton of telephone calls to friends and relatives.
TerryW: We just set up a tree and spray Silly String and its done
TerryW: Joking again LOL
kellyC_: Maryann didnt waste any time putting up the Xmas tree lol...... she sure has the christmas Sprirt..//2
JACK: HAVE TO DO THE TREE MY KITTEN NEEDS A PLACE TO HIDE
DarwynP: nice if it was that easy lol
TerryW: Kitten love Xmas trees
JACK: SHE IS A PEST BUT WE LOVE HER
TerryW: It's amazing the things kittens can get away with with us
JACK: SHE LOVES TO CLIMB UP AND LAY ON MY LAPTOP WHEN I TRY TO TYPE
TerryW: same here
billeric: Have all you guys remained upright this past couple weeks?
kellyC_: I'am allergic to cats myself..
Dart! entered the room.
JACK: TWO ANY WAY
TerryW: not me, fell again then the horse stepped on me
TerryW: I am ok
TerryW: bruised bone in foot only
Murf: I haven't fallen since Hover Dam when the USP picked me up
billeric: I have had acouple nasty falls myself. Even with a cane.
JACK: LAST THREE WEEKS OF WORK I FELL AT LEAST ONCE A WEEK
kellyC_: So far.. I have been ok.. no falls.. yet
Murf: Where is your chair?
DarwynP: it's a &*!@# getting back up isn't it
JACK: ON OF MY CO WORKERS SAID I FALL IN SLOW MOTION
Murf: Hey Dart
Dart!: Hey All!
DarwynP: That is true Jack I noticed that also
JACK: I AGREE WITH THE GETTING UP PART. IF NOTHING WAS THER I WOUD STILL BE LAYING THERE
Murf: I prevent falling by using my chair LOL
MICH: Bill... getting upright is a problem and the colder it gets the harder it gets... my wife often has to left me out of the wheel chair... but so far so good in barely getting in my powerchair to go to work
DarwynP: with myself when I could walk
kellyC_: Slow Motion?
billeric: I try to walk whenever possible-hoping to keep my strenght from disappearing completely
JACK: IT TOOK PRACTICE TO DO IT BELEAVE ME
TerryW: my falls always happen fast. Boom
JACK: MY FRIED SID WHIN I FALL HE HAS TO BRING A LUNCH BECAUSE I TAKE SO LONG TO HIT THE GROUND LOL,
Rich: One hand is always for holding on to something
Dart!: I am like you, Terry - I am down before I know what happened!
Murf: I go straight down like a building
Murf: on the ground before I know it
TerryW: We should be fall guys
TerryW: for movies
DarwynP: I could feel myself going but couldn't stop it. Thus the slow motion
JACK: WE HAVE THE PRACTICE FOR IT
billeric: I seem to catch my right toe on something-stumble and then fall. Usually wrench my right knee.
TerryW: When I fall now I really take a licking
TerryW: Literralyy from my 2 pups
TerryW: they are on me in no time
TerryW: likcing my face
JACK: WITH ME IT IS USUALLY MY FOOT CATCHEXS ON SOMETHING AND I JUST CAN NO CATCH MY BALANCE
MICH: I now try to avoid falls like the plague because up until 60 I bounced pretty good... but now I end up with a goose egg the size of a soft ball
DarwynP: Bill, get an AFO( ankle foot orthodic) it lifts your toesa for you. greatest thing since sliced bread!
Murf: I used to say I tripped on an air bubble
billeric: Sounds just about what I do Jack
TerryW: smkall twigs send me down
TerryW: or rocks
TerryW: or gopher holes
Dart!: What do you folks think of the suggestion I saw last night for using two walking poles?
billeric: I will have to look into that Darwyn.
JACK: WHAT HAPPENS IS MY LEGS GET TIRED AND I DO NOT LIFT UP LIKE I SHOULD
TerryW: godd idea if you are not having to carry anything
JACK: MY BOSS WOULD NOT APPROVE OF THEM, HARD TO USE GOING UP A LADDER
Dart!: I'm not much good for carrrying anything anyway.
TerryW: U sed to have 2 hiking poles I used but my friends did not appreciate the holes I left in the carpet in their house LOL
MICH: Be careful when if you get an AFO... as I liked the one's that are made for small kids because they still gave me alot of mobility... but some of the adult ones you feel like your ready to joust in steel armor
TerryW: Me kidding again
DarwynP: Tey are slim and fit right into your shoe. Mine are Swedish AFO"and work miracles
Dart!: These poles that I read of have cane-tips for on flooring.
JACK: ONLY THING I KNOW
TerryW: I should do stand up, or would that be sit down
Murf: Can you concult?
JACK: SHOULD HAVE BEEN A DOCTOR LIKE MY MOTHER SAID
JACK: SHE ALWAYS SAID I WAS A REAL OPERATOR LOL
TerryW: I think Kramer on Sienfeld had KD, he was always falling
DarwynP: This one is less obstructive than most and is short enough that your socks protect your leg from chaffing
Murf: I worked offshore drilling now I write procedures etc.
JACK: JUST NEVER HAD THE PATENTS LOL
DarwynP: Ankle foot orthodic
TerryW: I had once had a doctor that was blind
JACK: CAN'T SPELL GOOD EITHER
TerryW: It was har to get an appointment, his Sec was always telling me he could not see me today
Murf: Thats w2hat spell checker is for LOL
MICH: Darwyn... do the Swedish Afo's have a more specific name?
TerryW: TY I will be here all week, please tip your waitresses
billeric: bad Terry, bad, bad , baad.
kellyC_: got to go all the curtain rod fell off see ya all net time...
Murf: Thanks Terry LOL
kellyC_ has left the room.
TerryW: I used to work in a buther shop, but I got fired
TerryW: I got a little behind in my work
DarwynP: I believe that is what they are called
TerryW: I used to work for lenscrafters,
TerryW: I was fored there also
TerryW: made a specticle of myself
Murf: Terry - you got any more of those pain Killers? LOL
Murf: I need some!
TerryW: OK , I killed the room with those jokes
DarwynP: the back of the heel is cut out up about 2 or 3 inches, so the plastic goes down the side of your heel instead of cupping itr
billeric: Got a 9:30 appt. so got to go. See youse guys!
Murf: Take care
billeric has left the room.
Dart!: Where / how would I get inforrmation re: AFL's
JACK: THEY MADE ME LAUGH
TerryW: We have to try to keep a sense of humor
JACK: IF YOU CAN MAKE ONE PERSON LAUGH EVERY DAY THAT IS A GOOD THING
TerryW: it is very hard to sometimes
JACK: I AGREE BUT YOU HAVE TO THINK POSSITIVE
MICH: Dart... one good place for AFO info would be the MDA clinic
DarwynP: Most physical therapists and most sport medicine places that sell rehab stuff
JACK: THERE IS ALWAYS SOMEONE THAT HAS IT WORSE THE YOURSELF
JACK: I AM STILL MOBLE IT IS JUST NOT AS EASY AS IT USED TO BE
TerryW: Mostly my animals see my frustration when I am at home alone during the day and I fall and struggle with thing on the property, The hear me talk to go
TerryW: talk to god
TerryW: asking him is this some kind of practical joke he is playing on me
DarwynP: Do they answer? ol
JACK: THATRDEST PART TRYING TO DO THINGS THAT I USE TO DO AND I CAN LIFT IT UP IS THE HAT
DarwynP: or he
TerryW: they look at me like i am nuts
DarwynP: yeah I know the look
DarwynP: crooked heads and all
TerryW: God must answer me somehow because I get back up and continue on
MICH: Jack... I agree... hard to lift a hood up or even get the coat up to my shoulders without shimmying it with the use of a wALL OR COUNTER
TerryW: God gave us mountains so we can learn how to climb, The Video
TerryW: you gotta get back up
DarwynP: I remember
TerryW: I just think of that song when I fall
TerryW: Mountains by Lonestar
JACK: I NOW HOW THO CLIMB THE MOUNTIAN IT IS THE FALLING DOWN THE OTHER SIDE WHEN I GET TO THE TOP THAT IS THE HARD PART LOL
JACK: ARE YOU A GOAT ROPPER TERRY
Dart!: Terry, you have a good philosophy! And true, we HAVE to get back up!!
DarwynP: I'm finding it harder to get my arms above my shoulders lately also
MICH: Darwyn...can I ask how old you are? I'm 61
JACK: THEY TELL ME I HAVE PINCHED NERVES THAT THEY WANT OT OPERATE ON TO WO THAT HAS CAUSED ME A LOT TO TROUBLE ALSE
TerryW: The video Mountains by lonestar ---> http://www.youtube.com/watch?v=ZEQYN1DC220
DarwynP: Did you fall asleep there murray
Murf: sorry TJ was just in
Murf: Had to make sure things were going to plan
DarwynP: link works terry
TerryW: fingers not working good typing today
JACK: BEEN A GOAT ROPPER FOR YEARS COUNTRY IS THE BEST
JACK: SAME HERE
JACK: WELL IS MUST RUN NICE TALKING TO YOU ALL
TerryW: OK All, I gotta go, I hope to see you all in chat again soon.