Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I am very glad to see that you have added the personal stories, they are a great help. They give an outlook on what to expect with such a disease. It makes me proud to see people who are willing to express and share their stories with the world, keep up the good work!"

KDA Conferences and Educational Symposiums

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To view the 2018 KDA conference's agenda, click here! 

2018 KDA Research Presentations

KD Research in London UK

Kennedy’s Disease Support Groups

Tips and Tricks for Swalling Issues with Kennedy's Disease

Jameson Parker's Tips and Tricks

Using Exercise and other Physical Therapy Interventions to Optimize Functional Mobility

Don't Forget the Women

KDA 2018 Conference Attendees

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 Men with Kennedy's Disease

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Researchers

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Carriers, Wives and Significant Others 

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The 2017 KDA Conference, November 8-10 at the Holiday Inn in Old Town, Alexandria, VA. To view the meeting's agenda, click here. To view photo's and some pictures, go to our Facebook page by clicking here.

2017 KDA Research Presentations

Genetics Review and Reproductive Options in Kennedy Disease - Alice Schindler, MS & Heather Montie, PhD

PSC/CRISPR Platform at the Montreal Neurological Institute - Lenore Beitel, PhD

Kennedy Disease and Pulmonary Considerations - Noah Lechtzin, MD, MHS

Kennedy Disease 101 - Ed Meyertholen, PhD

Maximizing Functional Independence - Kathy Farrell, MS, OTR/L

Metabolic Changes in SBMA - Dr. Andy Lieberman

Nutrition and Kennedy’s disease - Marnie Dobbin, MS, RDN & Angela Kokkinis, BSN, RN

PolyQLength-Specific Engineering of a HiPSCModel of SBMA Using CRISPR-Cas9 system - Xia Feng, PhD

Silencing of Mutant AR Co-activators as a Therapeutic Approach - Manuela Basso, PhD

Speech and Swallowing in KD: Soup to Nuts - Dr. Neil C. Porter

 

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 2016 KDA Research Presentations

Understanding KD - Dr. Cynthia Jordan

Update from the NIH on KD - Dr. Kurt Fischbeck

Androgen Receptor Modifications - Dr. Janghoo Lim

Therapeutics Development for KD - Dr. Kurt Fischbeck

Excercise in KD - Dr. Christopher Grunseich

Pain Management in KD - Dr. Raghav Govindarajan

 KDA 2016 Conference Attendees

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Men with Kennedy's Disease

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Researchers

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Carriers, Wives and Significant Others 

 

  

 

Previous KDA ConferencesClick-here