First and foremost, the KDA is a Family
We came together because we had a common bond
Every day we live with Kennedy's Disease
We stay together because we are now friends with a common goal
We all seek a treatment or cure
Our family continues to grow
The KDA family has grown over the last seventeen years. As of February, 2017, 1,429 people in 51 countries have registered with the KDA. Of those registered:
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613 men with the defective gene
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181 women that are carriers
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331 family members and friends of someone living with Kennedy's Disease
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186 researchers and doctors