Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The KDA web site is a source of real information and even stories of other guys with the same problem. All of a sudden I was not alone, and also the information about the research going on gave me hope."

The KDA Family

First and foremost, the KDA is a Family

We came together because we had a common bond

Every day we live with Kennedy's Disease

We stay together because we are now friends with a common goal

We all seek a treatment or cure


 Our family continues to grow


The KDA family has grown over the last seventeen years.  As of February, 2017, 1,429 people in 51 countries have registered with the KDA. Of those registered: 

  • 613 men with the defective gene

  • 181 women that are carriers

  • 331 family members and friends of someone living with Kennedy's Disease

  • 186 researchers and doctors